Sickle cell anaemia is a serious inherited blood disorder where the red blood cells, which carries oxygen around the body, develop abnormally.

It affects the red blood cells, causing episodes of sickling, which produces episodes of pain and other serious symptoms.

Sickle cell anaemia is a serious inherited blood disorder where the red blood cells, which carries oxygen around the body, develop abnormally.

It affects the red blood cells, causing episodes of sickling, which produces episodes of pain and other serious symptoms.

Education

We educate warriors in under served communities in different ways.

 

We provide educational  books that give information to parents, children and young adults about sickle cell. 

 

We educate face to face on self managing at home and spotting the signs that need hospital care. We use Nigerian Pidgin English and sometimes get translators to translate in the local Nigerian dialect of the families we talk to. 

Mentoring

As part of your vision to educate and support young warriors, we are delighted to announce that we will be providing mentoring to our warriors in Nigeria. We want to support children and young people to live healthy and happy lives.

 

If you live with sickle cell or your child lives with sickle cell and you think you could benefit from mentoring, please contact us

ELIGIBILITY

  • Must be diagnosed with sickle cell

  • Aged between the ages of 8-21

  • Must live in Nigeria

  • Able to commit to online sessions on the weekend

BENEFITS FOR YOU

  • First hand learning from a highly experienced UK trained mentor for young people

  • Develop your confidence and self esteem

  • Learn coping mechanisms and self-management techniques

  • Support you in developing your employability skills

  • Access to other mentors in the founder’s network who could support you where appropriate

METHOD

  • All mentoring sessions will be virtual

  • One-to-one online (only on the weekends between 10:00- 14:00

  • If under the age of 18, a parent or guardian must be present

  • Up to 6 free sessions will be available to you helping you reach and achieve your goals

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Raising Awareness

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Untold stories

Dr Kumar, a global health physician and photographer, is sharing images and stories of challenge and inspiration from around the globe to raise awareness for sickle cell disease and help change how the world sees it. 

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I am number 17

1 in 17 people in the UK will be affected with a rare disease. I am number 17 is a campaign to help the voices of those with a rare disease to be heard.   

Advocating

We share literature and resources with communities and other charities we partner with to help educate sickle cell patients and their families 

 

We also work in partnerships with other grassroots charities to reach out to other parts of the country 

 

And we advocate for warriors through photography and telling their stories 

 

We are keen to explore accessible ways to educate and advocate for our warriors