“I have so many challenges taking care of him, because sometimes when he is sick, we are unable to take him to the hospital because there is no money for healthcare.” 

 

CHARITY DANIEL

Charity Daniel is 30 years old.

She lives in rural Kubwa Abuja. She doesn’t know when she was first diagnosed with sickle cell.

USMAN ABDULRAHMAN

“I am always tired and sometimes feel weak because I can’t do most of the things my mates are doing, "

MUSA (FAMILY)

"It hasn’t been easy for me and my husband financially; my husband doesn’t have any tangible work or occupation that brings in any substantive income."

JOY DANJUMA

She stays at home in excruciating pain, resorting to cheap basic ineffective pain relief or native herbal concoctions until it goes away.

FAVOUR JOSEPH

"His condition changed everything in our home because we had to make many adaptations and that impacted the wider family."

ZELIA SANI

Whenever she has a crisis, we are always afraid that she won’t make it, but somehow she gets to bounce back to life.

PETER DANIEL

She [Lydia] tells us that Peter regularly refuses to take his medication which breaks her heart.

LOVETH YAKUBU

"Living with sickle cell anemia hasn’t been easy for me, I go through a lot of pain whenever am sick, it’s as if my whole body is on fire."

HASSAN WAZIRI

His family makes sure he eats healthy meals regularly and takes his medicines daily. He said the love and compassion he gets from his loved ones is everything to him.

DEBORAH JONAH

"I am currently training to be a hair stylist so as to be able to start up my own beauty salon and to save up for university by next year.”

ES (15)

DANIEL SAMUEL

He was always sick when I gave birth to him so we took him to the hospital where they confirmed he has sickle cell anemia. I didn’t even know what that (sickle cell) was.

IDRIS IBRAHIM

“I lost my daughter to sickle cell, I was dealing with the devastating loss of her passing and then discovered that my son Idris also has sickle cell anemia."

KURES (FAMILY)

"My husband & I sometimes have financial challenges when it comes to taking them to the hospital during their crisis to get treatment. We feel hopeless many times."

KENNAN IBRAHIM

No mother wants to bring a child to this world to suffer; these kids go through a lot of pain and suffering when they are having a crisis.

EUNICE YOHANNA

She was diagnosed with sickle cell anemia when she was 3 years old. It hasn’t been easy for her and our family. She is always having a crisis.

JEPTHA JERRY

Whenever she had a crisis, her belly would swell up a lot. She would be in excruciating pain on her lower body.

JOY DANJUMA

She stays at home in excruciating pain, resorting to cheap basic ineffective pain relief or native herbal concoctions until it goes away.

DAVID IBRAHIM

In school, he wasn’t able to participate in any sports with his peers because of his condition and that made him sad and isolated.